NEVAN: AGE 13
3rd Relapse: Acute Lymphoblastic Leukemia
On Friday July 13th, 2012 our family's world was shattered when an ER physician from Cambridge Memorial Hospital told us he suspected Nevan had Leukemia. After being transferred by Ambulance to McMaster Children's Hospital and undergoing countless tests, it was confirmed a week later that our 4 year old little boy had Acute Lymphoblastic Leukemia.
Nevan underwent active chemotherapy for over 2 years including 30 intramuscular injections into his thighs. He showed strength and Bravery well beyond his years throughout the whole process.
On August 28th, 2014 our family celebrated Nevan's last dose of chemo. As everyone who begins this battle is told, anything can happen within the first year after treatment ends, so we didn't celebrate this amazing milestone. Even at one year, we had a private "hooray" with family but were still too weary to have a big celebration. At the end of November...15 months post treatment and with Nevan showing no signs of sickness, we booked a 7 day cruise with extended family to celebrate his 8th birthday and being cancer free. It was the trip of a lifetime and everyone had the most amazing time.
Just a few short days after returning from our celebratory trip, Nevan's cancer had relapsed.
He began another gruelling, harsher 2 year treatment plan. This time it tested us to limits beyond the first battle. Nevan was very fragile and suffered an E Coli infection that kept him admitted at the hospital so long that he was afraid to return home. He fought hard and recovered well. We were about 1 month shy of celebrating the end of his second treatment when we got a call saying Nevan's Cancer had now appeared in his Central Nervous System.
Before even completing this relapsed chemo treatment, Nevan's cancer found its way back yet again, this time in his Nervous System. He was entered into a Clinical trial at The Children's Hospital of Philadelphia, where we lived for 3 months.
This treatment was successful is allowing Nevan to live Cancer-free for almost 2 years...but his cancer returned for a 4th time on Dec 20th 2019.
Today Nevan is fighting his hardest battle yet. The only option at this point is a Bone Morrow Transplant. With no match being found in the World Wide Registry, Nevan's 9yr old sister Nylah will be his donor. She is only a 6/10 match which brings all sorts of higher risks, but we are very hopeful that this is the cure he needs.